Becky is not doing so well now. She is still fighting but the disease is taking it's toll.
She has been feeling really rough for a few weeks now. She is not getting any help from her doctors. We are waiting to hear from the association to see
if they can help.
Becky wanted to try Orkambi but her Doctor said no because they don't think it will benefit her. Becky has an appointment with her lung doctor next month. She is going to ask about the possibility of a double transplant - lung and
kidney. This is something that she has been thinking about. She still doesn't know if she is ready or if she is eligible for one. It would mean a trip to Cordoba again to be assessed. Last time she didn't meet the criteria for the lung tramsplant as her lungs
weren't bad enough.
We don't know if her symptoms now are due to the deterioration of her lungs and kidneys or side effects from all the medication she takes.
Keep fighting Bex. x