Updates in Research

Updates in Research

A treatment has been found that can eliminate the symptoms of CF. But this only works on 4% of the CF population.
It is being tested on other mutations of the disease. There are about 1400 known mutations.
It does not work on F508 the most common and most serious of the mutations.
A grant has been given to carry out clincal trials on a drug to help treat the disease. This will take several years to conclude. Then they will be ready for the next stage. For this more money is needed.
Ultimately we need a cure. Work is being carried out to try to find a cure through gene replacement therapy.
But all this needs money.

For more information follow this link:

http://www.youtube.com/watch?v=eXY3Hao5gCQ

2015

There are new treatments being tested. We are looking into trials but unfortunately you need the backing and support of your doctor to enable you to participate in a trial. Becky's doctor doesn't seem to want to admit there are new treatments being investigated.
So the battle begins to educate her.

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22.05 | 19:36

absolutely awesome! Thanks you for making and sharing this!

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22.05 | 10:31

Wow! What a beautiful tribute! I was very moved by this wonderful collection of images and music...So sorry once more for your great loss.

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21.05 | 21:42

Absolutely beautiful this bought tears to my eyes. What a beautiful lady beaky was your must be so proud of her such a brave girl. My love goes to you Sarah and

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15.04 | 13:48

Following; learning. Chris x

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